Zero Project 2019/20
Nayi Disha is an Indian NGO that supports families of children with intellectual and developmental disabilities. Its free online platform offers evidence-based information on topics such as education, therapy and future planning for their children, alongside an online peer support community and a directory of verified services. Offline support is also available through workshops and support groups. The platform receives between 600-800 visits a day and Nayi Disha started translating their content to support expansion to other Indian states.
Nayi Disha Resource Centre has three sections: a pan-India directory of services, a knowledge hub, and an online parent community.
The directory includes doctors, therapists, schools, and community support services. There are various search options, for example, by location or age of the child, and the directory also includes reviews from other parents.
The knowledge hub has evidence-based information in Hindi, English, and Telugu. Topics include diagnostic assessments, therapies, and age-relevant information, such as for early childhood or adolescence.
The online support groups for parents allow families to share blogs, educational videos, and other information.
Nayi Disha also offers offline support, including workshops, support groups, and family events, including some run by parents.
Since 2015, over 4,200 families have accessed online support or attended offline events.
Increasing access to information supports families to become better informed about their child’s condition and the evidence-based practices available, and to find appropriate services.
The online platform has received 110,000 visitors since it was launched in 2015
The online service directory lists 1,450 services across 64 cities in India
The website hosts 330 articles on different themes and age groups
Since its launch in Hyderabad, Nayi Disha’s programme has been replicated in other Indian cities, including Pune, Mumbai, and Bangalore.
The replication model is to identify early adopters to train as parent champions, develop networks with the local healthcare system, and partner with credible local organizations, providing them with the resources to adopt the model.
Nayi Disha is currently creating multilingual information resources and upgrading its technology to support such replication.